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Riggs58 Message
20 Oct 2011, 09:47 PM

My son was diagnosed with this rare disease about a year ago after being sick for 2 years. So far the main resource that i have found with information is NIH. We are still working to manage this disease and my son still has frequent attacks. There is no support group or resource help group. I am looking for medical professionals who work with FMF or others who either have this rare genetic disease or know someone who does. Thanks, Mom in Maryland