Hi Irerolper sorry for first seeing your post by now. If you wish to make contact, we live in Denmark. My husband is diagnosed with SCLS he survied a mayor attack by a miracle feb. 2016 and has, in spite of many nervepains and dropfoot (compartment syndrome) recovered a great deal and is receiving IVIG (60 gr. pr. kg – ones a month). This weekend I started to read all threads to check if I had missed anything, yesterday I discovered you and a norwiegian woman (profil – Silje), too. Wish you the best. Kristine