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Hej "male profile"

irerolper Message
2 Oct 2011, 12:45 PM

Hej "male profile" Jag såg din första inloggning januari och andra i oktober men inget skrivet om dig .Intressant få kontakt om du är en patient med scls .Finns endast två profiler från sverige. Vänliga hälsningar från irerolper
aporzeca Message
2 Oct 2011, 01:16 PM

Och vänligen fyll ut din profilsida, male, på engelska möjligen.
KristineZuccarello Message
9 Jan 2017, 07:40 PM

Hi Irerolper sorry for first seeing your post by now. If you wish to make contact, we live in Denmark. My husband is diagnosed with SCLS he survied a mayor attack by a miracle feb. 2016 and has, in spite of many nervepains and dropfoot (compartment syndrome) recovered a great deal and is receiving IVIG (60 gr. pr. kg – ones a month). This weekend I started to read all threads to check if I had missed anything, yesterday I discovered you and a norwiegian woman (profil – Silje), too. Wish you the best. Kristine