Good afternoon; I was wondering about adults that have this syndrome. I do not have any physicians that are familiar with the course of the disease. Thank you!

We have no known prognosis for Blau. Do you have it? Are you on medication. My 2.5 yr old has Blau with some overlap of CAID and takes adult dose of injections/medication daily. Thank you, Lisa Moreno-Dickinson President/Founder for StopCAIDnow.org

Tara, So sorry to learn of your pain and ongoing symptoms with this. Brody is 1 in 113 that have Blau and many question if Blau and EOS are related. The granulomas that brody has throughout his body/organs (internally) are non~ caseating. Your symptoms sound like an overlap and I question MCTD as well. Many are learning that Blau patients do have cardiac involvement and cranial neuropathy. I would be happy to speak with you and welcome you to visit my site at www.stopCAIDnow.org please feel free to call 1.877.CAID.644 Brody must have an overlap as well because without his treatment he would not have survived this. We can discuss more about you and how to get you the help needed. Most of CAID all have very similar symptoms but have different mutations that are defected. We have the first CME on CAID being offered soon and it will help many Doctors learn more about these diseases. Thank you, Lisa