Long time since the 2 previous posts. I wonder how Jessica and Mailady68's son are doing? My daughter was born in 1971 with Pierre Robin Syndrome and trisomi 22 (11q22q translocation). She is very severely disabled both physically and mentally. I looked after her at home till she was 24, she is now in a wonderful Care Home, I see her often. We live in England. I am happy to answer any questions.