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Welcome :)

Bizzzymom Message
30 Jun 2011, 10:25 PM

Welcome to the Warburg Micro Syndrome group! I am Lori, mom to MaryEllen (24yrs) and Kevin (23 yrs), both with Micro Syndrome. Please feel free to ask any questions. I am happy to help :) My children are the oldest known patients in the world with this syndrome, so I am sure that I have gathered some very useful information along the way :)
Bizzzymom Message
30 Jun 2011, 10:27 PM

Also, there is a very friendly group on facebook of Micro Syndrome families. If you have a facebook account, feel free to look us up :)