Welcome to the Warburg Micro Syndrome group! I am Lori, mom to MaryEllen (24yrs) and Kevin (23 yrs), both with Micro Syndrome. Please feel free to ask any questions. I am happy to help :) My children are the oldest known patients in the world with this syndrome, so I am sure that I have gathered some very useful information along the way :)

Also, there is a very friendly group on facebook of Micro Syndrome families. If you have a facebook account, feel free to look us up :)