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Baylee Message
21 Jun 2011, 09:13 PM

Hello, My name is Baylee. My daughter was diagnosed with PFV Syndrome when she was 2 months old. She is now 5 months and has undergone 2 surgeries to remove a cataract from her right eye.
miltarywife Message
24 Jun 2011, 11:55 PM

Good Evening, My daughter Arika was diagnosed at 3 weeks old. She is now 9 months and has also gone thru 2 surgeries, one on each eye for cataracts and glaucoma. Arika has also been found to have Microcephly, Diffuse Brain Atrophy, Hearing loss (if not complete), Viscular Hyperalgesia, as well as muscle problems. She takes nothing by mouth, everything thru a Mic-Key button. Does your daughter have any other diagnosis?