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AMN pain

Seetherfan Message
28 May 2011, 03:29 AM

I have been experiencing a lot of pain lately. I take muscle relaxers and they help, is there any other thing I can do about it?
easygoin1 Message
30 May 2011, 11:42 PM

You need to speak with your Doctor and find out if it is nerve pain, because if it is, it's called Peripheral Neuropathy" There are drugs that help, I take Lyrica (Pregabalin) and it helps for the nighttime nerve pain that started as feeling that my feet and ankles were in ice water.
Seetherfan Message
1 Jun 2011, 03:57 PM

I appreciate it, it's definitely nerve pain. Hips, back, and legs. I wear out very easily.
Lonelycat Message
5 Jun 2011, 08:04 PM

I experience pain, but I believe only as a result of my poor walking. I drag my leg when I walk, and this results in pain. I take painkillers for that (percocet) and I take baclofen for spasticity in my legs. Spasticity is twitching and tightness. These both help me immensely. Beyond these symptoms and various treatable symptoms, I find sitting in a quiet place and meditating is a very good treatment for generally anything. Hope you find what you're looking for!
Seetherfan Message
9 Jun 2011, 09:22 AM

I hear ya. I'll be moving soon to SC to my Biological Mother's place with my brother and sisters. I get no help here whatsoever. I'm just tired of this all. I have to get out while I still can. I will be in a much better situation there. Anyways, thanks for the help. Will get on Painkillers there because I will have no job for a while. I'm retiring at the lovely age of 30. :)
stevensims Message
1 Apr 2012, 02:06 PM

Hi, I suffer bad pain in my legs, I've been using Amitriptyline this takes the edge off? I've recently found using Magnesium Chloride flakes in a bath or oil all over with Vitamin D3, this worked well for me. All the best Steve
suzlady Message
2 Apr 2012, 08:34 PM

Hi Seetherfan, Unfortunately, I have very severe spasms that make my arms and legs extend as well as jump up and down vigorously. When I told my pain management physician about what my pain felt like here is how I described what I feel: My pain feels like I am being stabbed with knives repeatedly throughout my body and these knives have penetrated through to the other side. These knives have fastened me to a very large slab of dry ice and I am only dressed in my bathing suit while attached by the knives to the dry ice. Unfortunately, my pain has gotten to the point that even light touch or cool water especially triggers me into severe pain of a level 9 to 10, which is unbearable and I am also very spastic. Usually, I am able to live with a constant level 8 pain and try to make believe that it is not there or effecting my day. I take enough medicine to treat an elephant in nerve pain Neurontin, Lyrica, Zanaflex, Valium, Prozac, Savella, Methadone (not for addiction but nerve pain), Opana (Long Acting Morphine), Butrans Transdermal Patch (Long Acting Morphine Transdermal Patch), Voltaren Gel, and Celebrex. I am scheduled for surgery to implant a device that is called a spinal cord stimulator. My hope is to be able to reduce the amount of pain medicine I use, because I am so scared that one day I might accidentally fall asleep and remain sleeping if you know what I mean. I stop taking all narcotics 4 hours before bedtime and take a sleeping pill to get through the jerky movements of my arms and legs do throughout the night. I lose a lot of sleep but I am alive. I see from your profile that you live in Arkansas. I would have given you my pain management doctor, but I live in New York. Any New York Residents, Alexander Weingarten, MD is Board Certified in Anesthesiology and has been elected as a fellow of the American Academy of Pain Medicine http://comprehensivepainmanagement.org/index.html - Good Luck Everyone!! My prayers are with us for a cure to myelin destroying illnesses! I hope that I have been helpful to anyone in need! I think that is my purpose in life is to provide help! Best Wishes, Suzanne or Suz