It was U.T. Southwestern that diagnosed me 14 years ago when no one else in Texas, that I found, had a clue.
They have a M.S. research dept.(214-645-0555) Dr Darin Okuda seems very sharp, and on top of that, a super nice guy who communicates well.
The neurology dept. # is 214-645-8800 ext 5.
I'm in Fort Worth. If I can help, you can contact me direct at Johnuns@icloud.com