Hi Mamacassidy. I have one 19 year old son and two daughters, ages 16 and almost 11. So the only one afflicted is my son. But I know the girls can be tested to see if they are carriers when and if they decide to know as adults. In my family, my father had 3 brothers and one sister. Of the four brothers, two had Dent's (and died in their 30's because of it), so it really held true to the 50% rule. I don't think my aunt was a carrier as none of her 3 children (now all in their 50's) or grandchildren, seem to be afflicted.
And I echo Bluejeanne's comment completely. I try to stay positive as medicine has advanced so much since my father died. My father was seen in Boston ( by Harvard related doctors!) until his death in 1959, the same year I was born, and was not given any option, compared to what is now available.
Lada, I am so glad to hear that dialysis, if Daniel goes through it, works much better with an otherwise healthy person. It gives me more hope as I have heard stories about dialysis, but, like you say, about people that have various ailments. I believe Daniel has no bone issues, although he has had broken bones 3 times in his life (6, 15 and 18 years of age), but all incidents were while doing crazy things during different sports. And he did take growth hormone ages 12 to 18. But we are all short in our home (he is now the tallest at 5ft 8!), so I wonder.
The only other person in my family that has the disease is my uncle's grandson (in his 30's ) and he skipped dialysis, and had a successful kidney transplant from his mother (my cousin and carrier) more than 10 years ago.
Daniel has never had a stone, that we know of, and I believe it is because of all the meds he takes.