Hello - my name is Kelly, and I live in Texas. My 29 yr old daughter has a deletion of 11p11.2 - 11p14.1. She was originally diagnosed with WAGR syndrome (del 11p13) but we know now that her deletion and symptoms include PSS. I would love to communicate with other parents of people with PSS, and may have some helpful resources to share. You can email me at kellytrout@sbcglobal.net