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15q26.2

jnstrain Message
6 Feb 2011, 04:49 PM

Is there anyone living with this disorder or have a child with this disorder? We have a 4 year old son and have yet to talk with anyone having the same diagnosis.
CitlaR Message
17 Oct 2011, 07:24 PM

My daughter has been diagnosed with this disorder, she's 6 months old
nickandnoy Message
2 Mar 2017, 04:41 AM

Hello, our daughter is 3 years old with 15q26.2

Joussa Message
20 Feb 2018, 12:29 PM

Hello,

my daughter is diagnosed with this disorder since she is 5 years old. She is now 11 years old and is going to normal school and is verry happy with her life :-).

Joussa

Cdmr Message
25 Feb 2018, 01:27 PM

Our daughter was diagnosed at 2 weeks with this deletion and is now 4 months. She is extremely small but strong and healthy so far. 

KPKsMom Message
26 Feb 2018, 03:01 PM

Our Daughter is 11 and was diagnosed within a few days of birth. She is the most normal, sassy, fun 11 year old. She is very short (54 inches) but is on Growth Hormone to help that. She started it in June of 2016 and since then has grown 4 inches so it's working. The Endocrinologist thinks she may hit 5 feet!  I'd be OK with that for sure. School does not come easy to Krysha. She has needed extra help and also get tutoring. She has a bit of ADD and takes medicaiton for that which does help. The Dr's initially told us that any chromosomal abnoramality can cause learning issues. Honestly, I don't know if it's the deletion or just her. Meaning, if she'd never been diagnosed, we would just think school is tough. However, since we did know, we had her in the best accredited daycare we could find and have tried to give her as many advantages as we couild.

Mandilee Message
8 May 2018, 10:20 AM

My daughter is a little over a month old, still in the NICU. We found out about her diagnoses 3 weeks before due date. Due to the limited information and the severe conditions they assumed she was in with a diaphramic hernia, the doctors were sure she wouldn’t have a long life span after birth. My daughter has severe symptoms that are common with the deletions and her main issue is eating. Since she has a cleft palette and us the parents cannot fully come to  a decision on what to do next on her feeding intake is the main reason why she is still a patient in the NICU. Any other child being feed via G-Tube? 

Thank you all for sharing.

jlim73001 Message
28 Oct 2020, 12:36 AM

I'm a 19 year old girl who is currently a freshman at Clark University majoring in biochemistry & molecular biology. I have a huge passion in genetics because of my diagnoses of 15q26.2 deletion. I was told that I'm the only case (so far) with very minimal side effects from this disorder. The only effects I have is short stature and a compromised immune system.