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Just diagnosed - in UK

kjsjd Message
30 Jan 2011, 07:55 PM

Hi everyone My son has just been diagnosed with Dents 1. He's ok at the moment; just small for his age so far. It was picked up after investigation for excessive protein loss. I'm awaiting testing myself and am worried for my other son and my sisters 2 boys. I'd be interested in hearing from you and any others, especially in the UK