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Ocean Water...not salt water...

Normajean Message
12 Jan 2011, 05:02 PM

Hi! Just joined, but have had dd for over 20 years. Mine is all on the right side mostly on my front trunk and groin, but travels around and up my back when in full blown breakout as now. One thing I found helps me a bit is Ocean Water, I just kept noticing every time I would go in, it would clear. So now when I hit the ocean, I fill up a few coke bottles full of it and use it at the end of my shower to let dry on its own. I have tried sea salt and just plain salt water and they did nothing. Jeans seem to exacerbate the problem as does stress. At least all of this is true for me...Has anyone else tried ocean water?
Souleiman Message
12 Jan 2011, 10:49 PM

yes i have everytime i go on holiday i try to spend as long time as possible n the sea. the sea helps me quite alot, it gets rid of all the scabs and dry bits fall off. it leaves my skin all smooth for a few days and then it all comes back. im happy with the treatments im doing now read my thread i wrote. good luck.
mario111111 Message
10 Dec 2011, 04:33 PM

Hello Everyone, Can you please join the Facebook page for Darier Disease.. The page is called : Darier's disease, let's know each other!!! and please Souleiman can you share your experience on facebook... Thanks a lot!!!