Five years ago I had my thyroid removed and a subsequent raioactive ablation to treat papillary thyroid cancer. It has left me with this condition which has destroyed my life. I was a college prof and can no longer work. Everyday is a challenge...I never know from one minute to the next how I will feel, if I can function. And the anxiety that goes along with this condition is overwhelming.
Since it is a rare condition, I fell alone. I have to explain not only to people in generalbut even to most doctors what I have.
Is there anyone else out there with this? I would love to communicate with you.