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I was wondering...

miltarywife Message
1 Dec 2010, 11:01 PM

I have a 11 week old little girl, who at birth was diagnosed with microcephaly. She has had MRI's, ultrasounds and ct's done which showed excess fluid in/around her brain. She was also diagnosed with Diffuse Brain Atrophy (which they say will lead to developmental delays), Persistent Fetal Vascular Syndrome (blindness), Atrial Septal Defect, Peripheral pulmonic stenosis (both involve her heart ASD is a hole and PPS is a murmur), Chromosome 4q deletion syndrome (don't have a clue what that will affect yet) and failure to thrive. I was just wondering if anyone else's child/ren have any of these other issues or if they had any issues at all as they have grown up. The doctors are all saying everything is unknown. Any help would be greatly appreciated.
gillianharron1983 Message
7 Dec 2010, 10:25 AM

My baby was diagnosed at birth with microcephaly too. Obvious from his very small head circumference. MRI indicated pachygyria. Similarly doctors say everything unknown so I sympathise and understand. Baby is now 8 months (corrected age). He has been and still is difficult to feed (GERD). He has an overall stiffness, physio since 6 weeks has been a huge help. Development delay only really obvious from 5/6 months. He is not able to sit up by himself, doesn't seem to want to roll over or crawl and has only ever made a few 'aboo' 'aroo' noises. At the same time however he has surpassed all professionals expectations. For example they thought he would never co-ordinate his right side with his left and now he is happily passing objects between his two hands. It is very difficult to accept that you won't know what the future holds for your baby. My best advise is to take each day as it comes. Enjoy your little girl for who she is.