Please call me at 815-608-9296. Like you, my child has recently been diagnosed with Pseudohypoaldosteronism. I'd love to let you know what I've learned and I want to hear how you are dealing with it. A concerned Mom, Michelle

Hi, I just joined the site, but would love to talk to you about PHA...please feel free to post back or email me at nichols105@embarqmail.com. Thank you!

It looks like there are more kids out there with some form of PHA. A couple of us are going through genetic testing. Let's stay in touch. As there are so few of us some of us are also connecting on the Book of Faces (FB).

My son Chase is 10 months old and was clinically diagnosed with PHA at 5 weeks. Information is so hard to find about the prognosis...I too am on facebook. I can be contacted at nichols105@embarqmail.com or on facebook, my name is Michelle Nichols. I live in the US in North Carolina.

Hi Everyone, We just received our news from the Genetics team in Paris that Katie has got PHA Type 1 with 2 Mutations in her gene. still waiting on final reports from Paris, however she has also had a sweat test recently and she sweats excessive amounts of Sodium chloride through her skin and is on i very high level of salt compared to other PHA types that they know of. she is also now on blood pressure medication to lowere her BP of 125. Bloods have been good lately still have port-a-cath and nasal gastric tube for meds but hoping to go to gastostomy soon as i think this will be better for her development not having her arms tied down so much. is there a facbook page or group or is it just individual people to accept as friends?

http://www.facebook.com/pages/Pseudohypoaldosteronism/179879242048282 this is the link to the PHA group but as there are so few of us we just do personals. You can send me a friend request - Amanda Redgate. Do you know the names of the 2 gene mutations? Were they WNK1 and WNK4? Samantha also has high BP - Katie is the only baby that I have come across that also has high BP. I'll reply to your email after work. Come join us on Facebook.