Cookies help us deliver our services. By using our services, you agree to our use of cookies. Learn more

I would like to talk to you about your child with Landau-Kleffner syndrome!

AHibbs Message
24 Nov 2010, 05:27 AM

I am a student at the University of Wisconsin-Whitewater. I am doing research on Landau-Kleffner syndrome, and need to do an impersonal, brief interview with someone affected by the disease. However, I have had no luck in locating any such persons. I have turned to joining a group such as this, with the hopes of finding someone who will message me back and forth a few times, to fulfill my assignment. The main part of my project is to design a brochure to educate others on the disease. This is to be based on information I have found doing journal research, along with an interview. I do not need any personal information, and as a parent, I respect the privacy of all persons I talk to. Please help me educate others about this rare disease. Thank you!
Slagerwey Message
25 Nov 2010, 05:31 PM

Hello! First of all, thank you for what you are doing by looking into this syndrome!! As you have found, it is VERY difficult to find anyone out there to talk to and share with! I don't mind answering any questions you may have...we are still 'learning' about LKS as well. My home e-mail is: My name is Stacy and my son's name is Tyler. He is 5 1/2 years old. I am anxious to hear your findings!! Good luck, and thank you again! Looking forward to helping in any way I can :) -Stacy