I m trying to find out as much as I can about this sickness , my mother in low has it for last five years and has a very slow progress and if she gets any kind of a virus as flu it takes her back so far that we all cant undersand it!she is on heavy antydepressives and on PRONISON for last 5 years and since a year ago she got major problems with urinary infekcions!I m trying to reach somebody with simular problem so we can exchange our informations and experiences in order to help eachother fighteing this teribille disase!

Hello, I am 55 and have been diagnosed with HE for about 4 years. I seem to have the relapsing remitting type which has given me 4 major flare ups. I am currently in the midst of the 4 th. My symptums are mostly cognitve. I get lost in familiar places, can't organize my thooughts ect. I also become incontient, have mini strokes and. Lose my balance and sometimes can't walk at all. I get jerks all over my body and drop, knock things over and throw things. I am being treated at Ohio State University Medical Center, neurology felt in Columbus, Ohio mostly with high doses of Prednisone and have started on Imuran this tar also. I am Registered Nurse working in home care (when I can work) and have done and continue to research this nasty little disease as much as I can. There is a little bit out there you just have to get on the net. If I can help in any way I will be happy to share what I know.