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MD 1999 Report

irerolper Message
13 Nov 2010, 01:03 PM

Clswalts question to Arturo and Dr.Greipp. MD 1999 Report. Very interesting for me too. In late 1995, they started treating me for Scls. I am interested if my treatment was common for so many years ago. My (MGUS 9 / L) disappeared after treatment. Maybe I can find answers to the questions I have. Please, where can I find "MD 1999 Report"? irerolper
aporzeca Message
13 Nov 2010, 02:01 PM

I'm sorry but don't know what is "MD 1999 Report."
clswalt Message
13 Nov 2010, 03:44 PM

Arturo He is referencing my type O last week. It is the 1999 CLS report out of the Annals of Internal Medicine · Volume 130 · Number 11 page 905 by Naeem K. Tahirkheli, MD, and Philip R. Greipp, MD. Do you know how the terbutalin, theo and singulair treatment got started? I am interested because IVIG is for immune and the other meds are not. Irerolper I have a copy if you want to read the article. This is the article that my Doctor found to be able to diagnose me. Walt
irerolper Message
13 Nov 2010, 05:19 PM

Clswalt Grateful if I can get the report. Can I get it by e-mail? irerolper
clswalt Message
13 Nov 2010, 07:00 PM

irerolper Send me your adress wnbreidigan@verizon.net I can send you the new reports as well. Walt
aporzeca Message
13 Nov 2010, 07:44 PM

The reason why medications such as theophylline and terbutaline (T&T) have been given to patients with SCLS, if my understanding is correct, is because they are compounds that strengthen or prevent the breakdown of cells, including of capillary walls -- in medical jargon, they prevent a decrease, or foster an increase, in cyclic adenosine monophosphate (cAMP) levels in endothelial cells that line the interior surface of blood vessels. They have been used for decades to prevent and treat wheezing, shortness of breath, and difficulty breathing caused by asthma, chronic bronchitis, emphysema, and other lung diseases. They relax and open air passages in the lungs, making it easier to breathe -- but they do not cure asthma. Both have serious side effects, however. Singulair (montelukast), on the other hand, is a more modern asthma medication with few side effects that is supposed to have the same effect of strengthening cell walls. Doctors at the Mayo Clinic -- including Dr. Greipp -- were among the first to give T&T to patients with SCLS, and now also Singulair, in the hope that these medications would prevent capillary leakages. Experience shows that sometimes they seem to work, sometimes they clearly do not.
Windows Message
13 Nov 2010, 10:58 PM

CLSWalt, could you also send me the reports? I am interested to learn as much as possible. Thanks so much sally.egdeg@hotmail.com Sarah