On November 14th my husband & I are traveling to Bethesda MD for a stay at NIH. I have been accepted into the SCLS study group. Thanks go out to Arturo & Walt for information on this trip. Hope everyone is well - life in PA has been uneventful medically, just everyday functioning. Take Care Amy

Allow me make the same offer I make to all patients who let this community or me (directly) know when they're coming to NIH or the DC area: If by chance you would like to meet in person, to share experiences and "put a face to a name," I would be pleased to come and greet you and your husband while you are at NIH. There's no obligation; many SCLS patients value their privacy, and I understand that. If interested, let me know at _aporzeca@american.edu_