Hello Everyone,
Anyone living in the Maryland, DC area I would just like to invite you to the Myositis Awareness Walk this Saturday, October 9th at Centennial Park in Columbia Maryland. The walk will begin at 8am. Hope to see you there.
I wish that I could. I think we need to have a convention with all of us patients and families and doctors. I wish there was more information available.
I was just there this weekend. We live in PA but my daughter is at Johns Hopkins. She is now in grave condition and on a respiratory from complications. Thank you all for everything you are doing.