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Anybody Here

elizabeth3300 Message
2 Oct 2010, 10:00 PM

Hi everyone, I'm a new pheo patient. Would like to discuss this disease with anyone with info. This seems to run in my family and I'm just now finding this out. I've been all over the net looking for information. I found this site through the National Institute for Health.
mariom Message
3 Oct 2010, 06:47 AM

Hi elizabeth3300 I'm not sure if anyone on here is an expert but I for one will share what I know if you like. Have you been diagnosed with the SDHB mutation? What would you like to discuss? :-) Fire away! Mario