hi everyone, there is a yahoo group set up recently for folks with 22q11.2dup. http://health.groups.yahoo.com/group/22qduplication/ we are collecting information and making a table of parent observations and medical diagnosis/conditions that affect folk with this duplication. you can see the table in the file section of the yahoo group. you can join the group to contribute info, or you can email me. i have a 20mth old boy who was diagnosed with the dup when he was about 15mths old. motor/speech delay, heart condition, eczema, lots of issues... come over and join us - there are about 24 members of the group now - some of whom are genetics professionals so it's a place to spread news about the condition!