Well, that's lousy about your daughter. I've had surgery for polyps and also breast cancer. Luckily I've lived a long time with PJS, even though it's sometimes been difficult. Several years ago I started on online support group for people with PJS and JPS through Association of Cancer Online Resources (acor.org). It's been a great source of support & information. I'm not sure about this rareshare "community", I joined so I could meet other PJS people. What about you? Is your daughter the only one with PJS in your family? I will keep her in my healing thoughts. – Stephanie