Ben, my grandson has type 3, only 5 in the world with this type what type do yours have and what are the signs and symptoms?

hi sorry i haven't been on here for a long time, my son harvey was ruled out for type 2 and 1 but sadly he died before the rest of the diagnoses tests could be done 6 months ago now. he was 13 months old . i'm sorry to hear your grand son has it also. there is a group in the yahoo health groups with about 50 members who share information (mainly about type 2 ) but alot of the symptoms and medications and issues are the same. i highly recommend joining as they are a great support and a wealth of information. here is the link for you to follow, just introduce yourself, i hope you find the support you are looking for xxx anne http://groups.yahoo.com/group/PCHType2#n=home&c=home&p=0&v=none just copy this link above and paste it into the search bar at the top of the page, my email address is annoid2000@yahoo.com please feel free to contact me x