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secretwindow Message
31 Aug 2010, 04:40 PM

Ben, my grandson has type 3, only 5 in the world with this type what type do yours have and what are the signs and symptoms?
anne Message
1 Sep 2010, 03:56 AM

hi sorry i haven't been on here for a long time, my son harvey was ruled out for type 2 and 1 but sadly he died before the rest of the diagnoses tests could be done 6 months ago now. he was 13 months old . i'm sorry to hear your grand son has it also. there is a group in the yahoo health groups with about 50 members who share information (mainly about type 2 ) but alot of the symptoms and medications and issues are the same. i highly recommend joining as they are a great support and a wealth of information. here is the link for you to follow, just introduce yourself, i hope you find the support you are looking for xxx anne just copy this link above and paste it into the search bar at the top of the page, my email address is please feel free to contact me x