I guess I'll start thing off. I'm John, I'm 22, I'm from South Carolina and I was diagnose with PKC when I was 13.

Hello, I'm not sure if anyone is on here anymore, but my name is Meghan and I developed PKD and PKND when I was 22. My condition has continued to increase in new symptoms. I wanted to find others to talk to and see if they have any advice on how they deal with their symptoms.