If you should find this message and wish to email about PJS, please write. thanks, Stephanie

Hi Stephanie, I am the father of a 29 year old daughter who has Peutz-Jehgers. She was diagnosed in 2005 with the metatstatic colon cancer. Just in the last 2 months we have learned that the cause of her cancer was PJS. At this point all efforts to stop the spread of the disease have failed. She probably won't last much longer. I was wondering what your experience has been. Thanks Don