Hi guys, I'm Jim. You may know me from Liesa's posts. I'm currently lounging in my hospital bed, hoping the last traces of Theophylline have gotten the heck out of Dodge, so to speak. That stuff made me dizzy, grumpy, nauseus, (sp?) weak, sweaty and just generally miserable. I'm hoping that I can get away with the Terbutyl.....other stuff for a time, while we look for alternatives. Drop me a line if you're bored. Thank you for being here for us. This is a wonderful place. Jim

Hello again, I got cleared of the Theophylinne by last night. This morning I got talked into a really small dose. I had a bad day. We'll be looking for alternatives. Jim

hi Now I had the there’d episode start when I had some culled at 11/05/10 and I attached hear the test in the hospital the deference this time that they start to give me IVIG this thanks for your description and also for a doctor friend of me that she work in this hospital she help me so much to get this IVIG After 3 hours like you see in the test hemoglobin’s change from 19.9 to 17.4 so it give me the beneficiation to be 13.8 after 2 days i ask god to help all of us

Just in case you don't speak Italian I translated Elganzory's posting: Hello I IVIG last week I feel very good after 3 h, from hope IVIG I to you to be in good health and asking God to help us all luke well I hope you both are feeling better now.

@Elganzory: posso chiederle in che parte dell'Italia abita? Tenga presente che a Milano c'è il dottor Marco Cicardi (ospedale Luigi Sacco di Milano) che ha un'esperienza decennale in merito alla SCLS. Magari può essere utile far sì che i suoi medici lo contattino per un parere su come procedere nella terapia. Saluti. Nel caso può contattarmi direttamente all'indirizzo email: alap2@libero.it

salve sono a roma,ho gia un problema per aver il IG vena in ospedale per che non ci conscono il sclc nel sestema sanitario italianosi mi poi contatare a mio a mail yelganzory1@fastwebnet.it grazie