I was unaware BPES could be passed onto the next generation as no one in my family has it except for me. I had an operation when I was 4 in 1984 to try to open my eyelids more. They did this by inserting a metal rod with two hooks into my nose. One hook for each eyelid. I find when I am tired or relaxed I look exactly like I did as a child before the op. I am often refused service at a bar as they think I am intoxicated. I am hoping someone understands...