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Eating issues...

kellihernandez Message
6 Apr 2010, 07:15 PM

Hello, I'm new to this discussion board, but I am not new to the pachygyria disorder. My stepson, Michael, was diagnosed with it when he was 2 years old. He is now 7. Since then, we have done the best we can in seeing that he receives continuous and excellent therapy. However, we are still experiencing difficulty with his eating. He doesn't chew very well, and swallowing is very difficult for him. We currently puree his foods (and at least once a day try more textured foods in trying to help him develop the skills necessary to eat), but in general, he doesn't get as many calories in a day as he should receive. We supplement his foods with pediasure, but I've never seen him eat more than a cup of food at one sitting. Sometimes, when he eats a cup of food and drinks some milk, I'll think, "Wow, he's doing great today!" and then he throws it up. It's frustrating, to say the least, as it takes a long time to get him to eat anything more than one or two bites of food. His therapists are also experiencing similar issues with him. I am very concerned that his lack of nutritional health is actually hurting his ability to improve. Are there others dealing with this issue? How have you overcome it? What meal plans are you using? If I could just get Michael to eat, then I believe I could be much more hopeful about his future.