Hi, my name is Bet! I hope to talk with others who are panhypopit., even though I've had this for 27 years you can never get enough info.

Hey Bet! I can never get enough info either! Nice meeting you! maybe we can talk about this!

Me too! I've always been curious about other people's experiences. I guess it's not a very common condition.

Hi everybody.. Me too, sometimes I feel so isolated. Nice to be able to share things with you guys.

Lets all video chat? does anyone have yahoo? my email is mjuly82ruby@yahoo.com add me!

I really don't know how to video chat. Sorry. How old is everyone and how long have you had pan hypopit? I'm 33 and I've had it since birth. My email is shannonl73@verizon.net.

I really don't know how to video chat. Sorry. How old is everyone and how long have you had pan hypopit? I'm 33 and I've had it since birth. My email is shannonl73@verizon.net.

Hi there. Sorry not able to video chat for now....struggling to find time to be on computer for long. Nice to have friends with the same condition like me...it's enlightening.

I think I've been in every forum under panhypopituitarism today. My name is Nancy and I've had panhypopituitarism since I was ten days old, which was almost 31 years ago. People tell me that I look like I'm 18, which pan-pit helps with a lot. I would like to connect too so if you would like email me at nancypat30@gmail.com. I am working on creating a non-profit called Panhypopituitarism.org. It will be a 1 stop resource and outlet for people to connect, find doctors (I got a lot of work to do on that), and other information. There will also be a forum in there so we can all talk about all things Panhypopituitarism. I've been working on this project for awhile and now I finally have a website designer (who is working on it as I write this) and all I have to do is submit the right forms and I'll be on my way. The reason why I started this project because like all of you I turned 30 and I kept asking myself why no one is creating anything for this rare medical condition for people with pan-pit. So I figured I would take the lead myself and just do it. I hope everyone is having a great day. If you would like to see something on my website please let me know. I look forward to hearing from all of you :)

Hi Nancy, I drop by to say hi to you. That's great initiative for you to built one. I wonder how people who are born with Panpit managed to go through their life...it amazes me.

It amazes me too, Rose! There is barely anything out there for people that have pan-pit like us and if there's anything there are all medical terms in that we could never understand. I'd really like to bring people that have Pan-Pit together because really we can only learn about it through each other. I'm hoping to get it launched by March 10th, but we'll see :) If you have any ideas that would help with this site I would be eternally grateful :) Please feel free to email me. I'd really like to connect with some people :)

HI! I am so happy to have found this site. I've been pan-pit for 11 years, and I've felt pretty isolated with this medical issue, looking really healthy from the outside, but not feeling quite right on the inside. I'm in great health, have a beautiful 7 year old daughter from in-vitro treatments, and I'm now pregnant with my second. Things are not easy , as we all know, but it is so nice to know that there are others out there. I have a question, how do you guys react to getting the stomach flu? I always require hospitalization and intra venous cortisone, and it takes me at least a week to regain my strength. Speak to you all soon, and good on you Nancy for taking the lead on this. Not enough info out there for us.

Hi everyone! Quick question. Is anyone on cortisol? I had quite the experience lately with it. Last week I had thoroughly thought about my use of cortef and what it does to me and how I felt while I was on it. I was recently diagnosed with hypoglycemia after I spent a day at the hospital on my birthday. They super dosed me on my cortisol and I wasn't waking up, so they dosed me with glucose and I was super hyper after I woke. A week later I went to my Endocrinologist, and he didn't give me glucometer, I went to my primary care and she gave me one. I started doing my sugar levels not too long after I got the glucometer. Last week I took my levels before I ate and it was 104 after I ate and before bed, not long after I took my cortisol my level was 64, the morning after I woke early and thought of something. What if I took my levels before I took my cortisol and an hour after I took my cortisol. Before I took my cortisol my level was 92 and an hour later, it took me 3 test strips but my sugar was 23. So I knew for sure that it was my cortisol. Has anyone had this happen before? My symptoms were cold fingers, cold toes, no feeling of tounge, and I was slurring my words. If you have to same symptoms ask your endocrinologist right away if you really need it. :) Have a fantastic day. Look up my website. www.panhypopituitarism.org There has to be a lot more work done, but it's a start :)

Hi Nancy. Tks for the info. I do have that slurry of words sometimes. The body trembles with cold fingers and toes. I'm not sure whether it is the hypoglycemia or hypocortisol. BTW, I went to your website, but it says 'site not published'. Nice effort. Keep going.

Hi Rose-- Yeah, it was because it was in the middle of a transfer to go daddy, but it is back up. It was to the point that people were thinking that I was drunk. People didn't want to be near me. I felt like Jekyll and Hyde. It was scary. I wanted so much to feel human and I wasn't it. I really noticed it 2 years ago after I went through Puberty at 29. Yeah, that's why happens when my endocrinologists don't watch my cortisol intake properly after I went through puberty. I hope everyone is having a fantastic day! Nancy nancypat30@gmail.com

Hi Nancy I hope you're more familiar with the cortisol intake now. Have a fantastic day to you too :).

I hate to be a pain in the neck, but my site is now on Facebook. If you would like to "connect go to" www.facebook.com/panhypopituitarism I hope everyone is doing well!