Thank you so much for sharing your story on Mystery Diagnosis. Your story is very similar to ours I found myself nodding along. I have requested a copy to show to my twins who turned 5 yesterday when they get older. I am hoping it will help explain to them what happened to their father and why he is no longer with us. I think the graphics of what happened will show very well such a hard to explain concept. Thanks again for this act of kindness, I am sure it was not easy. Sharon

Wow, it was pretty amazing. I pretty much went through the exact same thing. Its wild seeing a story so similar to mine shown up on TV. Cheers Walt, thanks for making this syndrome more visible to people, parents and medical professionals. You've done a great service.

Walt, i have requested a copy of the show. Unfortunately, i missed its airing. But, it sounds like you are already getting rave reviews from the scls group. In advance, i want to thank you for devoting your time and energy to making this possible. The more we educate people, the greater the possibility of lives can be saved. sincerely, marilyn

I wanted to add my thanks to Walt and Nanc for contributing their story to the Mystery Diagnosis program on Capillary Leak Syndrome. I thought the program was very informative and that they also did a great job in introducing the human element that we and our families have all faced. We all dread the trip to the ER and we hope this program will help the medical community understand how to better treat our condition. Thanks Walt and Nanc! Allen