I worked on this site all day but had a file extension wrong. Unfortunately it will only let you submit to Google once daily so I can't be sure if I have fixed the problem or not. I'll call tomorrow if not.
If anyone is interested in joining, I imagine I'll have it going by 2/18/10. I have no experience in this area--just putting something together. I heard from someone doing a research study in Cleveland and she said her former patients were talking about getting a group together and it's my hope we can all merge here since we are a rare bunch.