when he got diagnosed he is 2 years old. Very early. Now is he is close to 5. he is protien uria, calcinueria etc. Using Hydrochlorothiazide medication .. consulted some specialists in this area. And using the medications. I have been searching for a community like this for some time did not find one, so started of one myself to provide some attention to the researchers. Since it is rare disorder not much help any where. I will be keep checking here for updates.. Thanks parents.. vistaonly@yahoo.com

I am happy to announce that Dent disease registry is founded at Mayo clinic. Our purpose is to help and connect with Dent disease patients. Please get in touch with me.

Thanks LBL. I got your email. I will get in touch with you.

LadaBL -- please e-mail me at juuliedowns@yahoo.com. I'd like to discuss the registry with you!