I am undergraduate student and I’m doing a project on Hallermann-Streiff Syndrome. I need a personal story answering the following statements:
Characteristics that affect the family member
Interventions the family has received or used and like
Recommendations the family has for educators working with the children
Resources that the family can recommend to other families and educators
If anyone has any information that would be greatly appreciated?! I have been having a hard time finding information.