Well I know I'm not the only one in the world affected by this condition and I joined this site to hopefully reach others who are on the same boat. Any comments?? When did you or someone you know receive the news about their condition and how long have you known? Have you come across other health issues regarding this?? I am 22 years old and have just pretty recently been diagnosed with this so it's very new to me. Any feedback is much appreciated, thanks! :)