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CMT - axonal degeneration

lsames Message
6 Aug 2008, 01:33 AM

My daughter has Giant Axonal Neuropathy, (GAN). This is an autosomal recessive disorder. The mutation is on the 16th chromosome and the gene is also called GAN. This disorder is very similar to the axonal versions of CMT. We have formed the first org. in the world for GAN and are hosting a scientific symposium to being scientists together to stop this horrific, fatal disease. Please visit our website at www.hannahshopefund.org and let us know what's going on with CMT research for axonal degeneration. Innocent peoples lives depend on us all....