I wanted to share some information on a Dr. in Baltimore that specializes in AHO that we see. There is a clinic being open for Albright's and if anyone is interested the number and everything needed is listed in the letter.
I wanted you to know that I am moving my clinic and my laboratory to the Kennedy Krieger Institute across from the Johns Hopkins Hospital as of Jan 2nd. I am working on a brochure and letters to go to families, but it would certainly be wonderful if you could start spreading the word that I will be starting an official Albright's Center at the Kennedy Krieger Institute in January.
All donations will now go to the Kennedy Krieger Institute (address is near the bottom of the e-mail).
My lab will be there and focus on Albright's, too. I will also be in charge of the Developmental Bone Disorders clinic. I will still be on the faculty in Peds Endocrine at Johns Hopkins, but as of January 2nd, I will now have my main position as the head of the Albright's Center and also the Developmental Bone Clinic as both Faculty and Research Scientist at the Kennedy Krieger Institute (KKI). KKI is world-renowned for helping children with rare disorders, and they want to expand to have a group of investigators who do clinical and lab research on rare diseases -- they also needed a bone/endocrine specialist.
This was a job offer that dropped out of heaven. This is really a tremendous breakthrough for Albright's if all goes well, but I need to spread the word to patients who are in need of this clinic. There will be coordination of care at the time of the visit with the possibility of seeing PT, OT, orthopedics, neurocognitive, neuropsychology, speech, nutrition, rehab, specific testing for cognitive/learning disabilities and psychiatric disorders, etc, etc. I am trying to make this extremely comprehensive.
The number to set up appointments is: 443-923-9400 and appts can be made starting Dec. 2nd. I will have my new phone and e-mail address soon.
I will also be dependent on patients/families helping with fund-raising to keep the center afloat. Donations will now be directed to the Kennedy Krieger Institute instead of Hopkins.
We will hopefully be able to have a huge benefit in honor of the start of this Center -- I never thought I'd see the day.
All donations should be directed to:
Kennedy Krieger Institute
Attention: Mr. Joseph Stein, 6th floor Tower
707 N. Broadway
Baltimore, MD 21205
with the check stating at the bottom "For Dr. Germain-Lee's Albright's Research" and also a note enclosed with the check if possible.
This is really a breakthrough for Albright's.
Happy Thanksgiving and hope all is well with all of you -- and say hi to Carter for me.
Emily L. Germain-Lee, M.D.
Associate Professor, Pediatrics
Division of Pediatric Endocrinology
The Johns Hopkins University School of Medicine
600 N. Wolfe St.
Baltimore, MD 21287
Phone: 410-502-7566 (office)
410-955-6463 (patient/clinical concerns)
Fax: 410-502-7580 (office)
410-955-9773 (patient/clinical concerns)