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akovacs62 Message
23 Nov 2009, 01:11 AM

Hi, my name is Amy and my 17 month old daughter Olivia was diagnosed with pachygyria at 1 year of age after having seizures since 2 months old. Both hemispheres of her frontal lobe are affected by the pachygyria. After an extremely difficult year, the seizures are finally mostly under control and she is doing pretty well. She is delayed, but gets therapy and tries very hard. She is continuously progressing, but very slowly. She is pretty wobbly and seems spacey alot, but I sometimes attribute that to her 3 seizure meds. I would love to talk to someone who understands what we are going through. Thanks
mimi42 Message
26 Jan 2010, 07:05 PM

hi, not are doing all the right things. keep her in therapy as it helps your little one and you too. it is nice to hear them say that she is improving, since we tend to need to hear it from someone else. my grandson is 2 and a half. he progresses daily and is truly a blessing. God has plans for these little ones and with the love and support from families they are able to be all HE intends them to be. mason will start school next school year PPCD. we have an awesome one here at the school that i teach at. God Bless.