I have a 2 year old daughter who was diagnosed with plasminogen deficiency at 1 year of age. Looking for anyone else who suffers with the same condition so they can help us understand what to expect.

hi there my duaghter has just been diagnosed to and we havent been told much info either it wud be grate if we could chat as this is very hard to find people with the same illness plzzz reply thanks

There are only a handful of children with this condition. My daughter is the only one we've been able to locate in the US. Info is very hard to come by fortunately the is a doctor at the Cincinnati Childrens Hospital in Ohio who is from Europe and had seen this condition before and was able to diagnose my daughter but only a handful of physicians have ever seen a case of PD. We have learned alot over the last 3 years most of it we've had to research ourselves and we've never found another patient who's parents we could talke with. my email is esor36@hotmail.com we can talk anytime you want

My granddaughter has just been diagosed with plasminogen deficiency and is recovering from a very severe eye infection after spending a week in the hospital. I am concerned and worried and don't know much about this condition. Any advice would be much appreciated.