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2 Nov 2009, 05:21 AM

Thanks God, I found Patty, Jesse s mother as soon as Fiorella my daughter was diagnosticated by MPS III A Sanfilippo s syndrome, same than him, and she is my guide and my hope resources. So, I suggest to name her OUR SANFILIPPO LEADER !!!!!! Also, if anyone has new info about this disorder....thanks a lot,CECILIA
Pattyt Message
3 Nov 2009, 08:24 PM

Cecilia, You are too kind. Thank you for your kind words. I am sure there are many experts out there, they have just not found their way here yet. My best to you and Fiorella. In Love, Patty