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Nail Patella Syndrome

mbryce Message
5 Aug 2008, 12:33 AM

Well, it looks like I'm the only one in the NPS community! They say that NPS occurs I in 50,000. I belong to a great support group and interact whenever someone brings up something of interest. If you have NPS, email back and I can give you the website to go to. I'd never heard of NPS until about 2 1/2 yrs ago when my grandson was born. His little foot was all twisted up and he had the same kind of thumbnails as my daughter and I. I began a search on the web about club foot and strange thumbnails. Low and behold, I found all this information on NPS. It was really amazing! I guess that's all. I hope I don't remain the only one in the community. That would really suck!
CarolJLF Message
10 Dec 2008, 09:50 PM

Hi Maria, I just found this community, so now you're not the only one here! Hopefully, some others find us, so we share our knowledge and experiences to help educate people with NPS, thier families and their medical professionals. Thanks for getting this group started! Carol