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Bannayan Riley Ruvalcaba Syndrome

jneville23 Message
18 Sep 2009, 12:56 AM

My son just got diagnosed with BRR and I am looking for others who are familiar with the genetic disease.
AndreainArkansas Message
13 Feb 2010, 11:04 PM

From what I have heard it is very similar to Cowden's which I have but one of the differing characteristics is head size is smaller. It basically causes the same things--lots of benign and sometimes cancerous lesions. I'm waiting to see if my 4 year old and 6 year old have Cowden's right now and am already a nervous wreck.