Welcome to our SCLS community! First take a look at all the information that is already on this site and see if any of it is useful to you. Then please add many more details to your profile, telling us about the nature and frequency of your husband's episodes, the symptoms he experiences, the medications he has tried and have worked (or not), etc. etc.
It sound to me like Mystery Diagnosis could use your story for their program, so you may want to contact Katie at firstname.lastname@example.org (see above).
If you wish to communicate with other patients you can either (a) create a separate discussion topic and perhaps people will reply to you, or (b) provide your email address and invite people to write to you, and perhaps people will. The more you tell about yourselves, the more others will open up about themselves.
Also, we're looking for volunteers to have themselves tested at the National Institutes of Health, located right outside Washington DC. Think about it and if you are interested, contact the lead scientist there, Dr. Kirk Druey, at KDRUEY@niaid.nih.gov