Hi, a little about myself. I'm 26 years old. I have had many medical problems in my past, and some still on going. I was diagnosed as a new born with Marfans but did not fit all the criteria. It wasnt until April 2008 that a geneticist informed me that I had SGS. As I do research I find that I fit just about every category of medical problem listed.
What about yourself? Do you have any further research on SGS?