We have recently been sending out letters to all uveitis consultants in the UK to give them the results to the survey on the incidence of birdshot. We undertook this following the Boston Birdshot Conference last October.
We thought you would be interested to know that out of 72 consultants surveyed we had a response rate of 47% and established that there were over 268 patients in the United Kingdom. We know that that this will not include everyone. We did our best to ensure that we were not double counting by asking about tertiary referrals and whether patients were seen by more than one consultant.
The survey reveals that, contrary to common belief amongst the medical professionals, the department of health and the government in the UK, that there are many more cases than expected.
Birdshot Chorioretinopathy seems to be on the increase and it now seems to be affecting younger people. Whilst not looking at the age of onset in the survey, we are aware that it is now affecting people in their thirties and are waiting confirmation about young children who are suspected to have a diagnosis of Birdshot.
Having established where there are over 268 people in the UK who have been diagnosed with it, the survey can be replicated in Europe by other Patient interest groups. This will help research into the auto immune condition.
If anyone wants to have more detailed information about the survey results, we would be happy to hear from you at birdshot @ live dot uk. We have a chart and table that shows the numbers and the regional split. Which we could send you.
We hope that this data will be of use and plan to carry out further studies to obtain further useful information. We have already had excellent feedback from several leading doctors.
All the best Annie and Rea