Hi, my granddaughter has septo optic dysplasia, she has low vision and she is not holding her head up yet, any ideas please, Ta Pat

Sorry Pat! I just joined this site. How is your g-daughter doing now? I have SOD and I didn't walk until I was 2 or crawl til I was about 1. it's normal for babies with low vision to take longer to crawl walk. I talked earlier than most though and I think my mom would have prefered me to walk early! I hope all is well! LA

Hi, good to get messages, my granddaughter also has epilepsy and cerebral palsy and so she's not sitting up yet, she has no balance, she is 2 now, she's a happy kid and hopefully with physio she'll be ok. Good on you for doing well, thanks Pat

Hi my name is fiona i have a 4yr child wih panhypo he was diagnosed when he was 2 days old

Hi empo- I am Nancy and I was diagnosed with Panhypopituitarism at 10 days old almost 31 years ago. How are you? Do you have any questions. If so email me at nancypat30@gmail.com. Have a great day! Nancy