Hi, I am Deb. I am 40 years old. I have had this disease all my life. I live a very normal, great healthy life. I have for the past 10 years been able to eat almost anything due to the invention of sucraid. This drug has been a miracle drug for me. It does work and well. The drug is extremely expensive and some insurance companies do cover the expense but if not there is a copay assistance plan that will assist you. It is not based on income. The plan is that no patient that has this disease will have to pay more than $75.00 to get the sucraid.