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myrovlytistrust Message
24 Jun 2009, 02:55 PM

The Birt-Hogg-Dubé Family Alliance and the Myrovlytis Trust have recently relaunched with the aim of making it the primary resource for BHD patients, families and researchers. Visit now to access further information! We have sections describing the symptoms that are associated with the Birt-Hogg-Dubé syndrome, current methods for diagnosis and treatment, and some tools that may help you, such as an explanatory letter you can print and give family members, a business card sized personal BHD medical card to carry with you, and more. We also encourage you to share your experiences on the forum.