I'm very sorry for your loss, Meaghan, and that I replied too late to your first post to make any kind of difference. Not that anything could have helped I imagine; and that's the toughest thing. I had your "Help Me Please" topic flagged for a long time - I just didn't know what to say. Words seem so useless, but there's comfort in this community (thank you rareshare.org people!).
If it's possible for you to do so, for the sake of your family's future preparedness and/or peace-of-mind, I recommend that you all see a geneticist and have yourselves tested for the defect in the ABCD1 gene.
My Mum, also a AMN sufferer, insisted that I did (fortunately, my result was negative), and it really has eased our minds (hers, especially) about possible future reoccurences of AMN in our family. (It looks like that, after 3 consecutive generations of heart-breaking disability, AMN has finally been bred out.)
I hope your brothers (and nephew?) have found peace and joy and are free from pain and disability in the embrace of the next world.
God bless and keep you.